‘Heartbroken’ Mum Discovers Baby Has Inherited Rare ‘Butterfly Skin’ Condition
Saturday, June 6, 2026
epidermolysis
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Jennifer Taylor, a 34-year-old mother from Prescot, Merseyside, has lived her life with dystrophic epidermolysis bullosa (DEB), a rare genetic condition often described as ‘butterfly skin’ due to the extreme fragility of the skin, resembling a delicate butterfly’s wings. The disorder causes skin tears, blisters, and severe pain from everyday activities such as writing, walking, and eating.
Jennifer first showed symptoms as a baby when her thumb blistered and lost a fingernail.